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News Release

June 27, 2017

Benjamin Rose Institute on Aging, Family Caregiver Alliance to Develop Online Resource to Compare Evidence-Based Programs for Dementia Caregiving

Funding from The John A. Hartford Foundation, Archstone Foundation and The Retirement Research Foundation help launch project

(Cleveland, OH). Benjamin Rose Institute on Aging and partners at the Family Caregiver Alliance have begun to develop a web-based resource to help health and social service organizations compare, select and implement evidence-based programs for dementia caregiving.

Work began in May, 2017 thanks to a $500,000 grant from The John A. Hartford Foundation. Additional grants received from Archstone Foundation ($200,000) and The Retirement Research Foundation ($121,074) have completed funding for the 30-month project.

The project leadership team includes David Bass, PhD, Senior Vice President for Research and Education, Benjamin Rose Institute on Aging; Kathleen Kelly, MPA, Executive Director, Family Caregiver Alliance; and Katie Maslow, MSW, Visiting Scholar, The Gerontological Society of America. Dr. Bass, Ms. Kelly and Ms. Maslow are Co-Principal Investigators and will collaborate throughout the 30-month project period in all project tasks, and in updating and sustaining the Online Resource after the project is complete. Julie Rentsch, MA, Senior Research Analyst and CAHPS Survey Administrator at the Benjamin Rose Institute on Aging, will serve as the Project Director.

Evidence-based programs for dementia caregiving can help improve the ability of family and friends to assist a relative with an illness that causes dementia or memory problems. Many caregivers are stressed by caregiving, which can negatively affect their physical and emotional health, finances and family relationships. However, most organizations that serve people with dementia and their caregivers are unaware of these programs or do not know how to access them.

The Center for Research and Education at Benjamin Rose will lead the effort to develop content for the Online Resource, reviewing 50 or more evidence-based programs designed to help families dealing with a dementia diagnosis. The San Francisco-based Family Caregiver Alliance will lead the development of the website to help organizations compare and access programs.

"The goal of this Online Resource is to increase knowledge about and implementation of programs by service organizations, providers and funders," said Dr. Bass. "Ultimately, this will increase the number of families who are able to access and benefit from these programs that have been proven to work."

One-third of the 18 million family caregivers living in the community in the U.S. are assisting a relative with dementia. Another 2.7 million provide care for someone with memory problems who has not received a dementia diagnosis.
While the number of people who would benefit from evidence-based programs continues to increase, there is no comprehensive information source that describes these programs, details their characteristics and enables programs to be compared.

The project between Benjamin Rose and Family Caregiver Alliance will fill that gap. The Online Resource will be a clearinghouse for information on programs, including the real-world experiences of organizations and providers that have implemented these programs.

"This Online Resource will help organizations that serve individuals with dementia and their family caregivers choose programs that match their needs, resources and target populations," said Dr. Bass.

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Benjamin Rose Institute on Aging (www.benrose.org). The mission of Benjamin Rose Institute on Aging is to advance support for older adults and caregivers. Our work is accomplished by deepening the understanding of their evolving needs in a changing society; developing and delivering innovative, high-quality solutions; and promoting effective public policies.

Family Caregiver Alliance (www.caregiver.org). For nearly 40 years, Family Caregiver Alliance (FCA) has worked, locally and nationwide, to support and sustain the critical work of family caregivers and caregiving professionals. Our National Center on Caregiving unites research, policy and practice to advance the development of high-quality, cost-effective programs and policies for caregivers in every state. FCA CareJourney, the Caregiver Resource Line and the Online Learning Center provide information and services to family caregivers wherever you live. In the San Francisco Bay Area, FCA's Caregiver Resource Center provides family-centered direct services in a six-county region. Our work is driven by the needs of family caregivers' offering compassionate support, critical knowledge and useful tools to manage the complex demands of everyday caregiving.

The John A. Hartford Foundation (www.johnahartford.org). Founded in 1929 by John and George Hartford of the Great Atlantic & Pacific Tea Company (A & P), The John A. Hartford Foundation, based in New York City, is a private, nonpartisan philanthropy dedicated to improving the care of older adults. As 10,000 people turn 65 every day, the largest-ever generation of older adults is living and working longer, redefining later life, and enriching our communities and society. Comprehensive, coordinated and continuous care that keeps older adults as healthy as possible is essential to sustaining these valuable contributions. The John A. Hartford Foundation believes its investments in aging experts and innovations can transform how care is delivered, lowering costs and dramatically improving the health of older adults.

Archstone Foundation (www.archstone.org). Established in 1986, Archstone Foundation is a private, nonprofit foundation whose mission is to prepare society for the growing needs of an aging society. Under the leadership of president and CEO Joseph F. Prevratil, JD, Archstone grants up to $5 million annually, primarily in Southern California.

The Retirement Research Foundation (www.rrf.org). The Retirement Research Foundation (RRF) is devoted exclusively to improving the quality of life for our nation's older adults, especially those who are vulnerable due to advanced age, economic disadvantage, or disparity related to race and ethnicity. Since its endowment by the late John D. MacArthur in 1978, RRF has awarded more than $200 million in grants. RRF fulfills its mission through grantmaking programs that support innovative advocacy, direct service, professional education and training, and research projects that benefit older Americans.


 

Contact: Jeanne Hoban, 216.373.1686, jhoban@benrose.org