Resources
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Resources
Participating in Dementia Clinical Trials and Research Studies as a Caregiver
As a dementia caregiver, you’ve most likely seen references to research studies, surveys and clinical trials when researching your loved one’s condition. Whether it’s the World Health Organization’s statistic that 55 million people around the world have dementia or the suggestion that exercise and a healthy diet can lower the risk of developing dementia, most of what we know about the disease comes from rigorous research.
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What the RAISE Family Caregivers Act Means for Caregivers
Too often while providing care to our loved ones, we may find ourselves lacking things like services, respite options, financial security, workplace security and education to address the challenges we face every day. To try to address this shortcoming, the Recognize, Assist, Include, Support, & Engage (RAISE) Family Caregivers Act was signed into law in January of 2018 to come up with a national family caregiving plan.
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Recognizing the Challenges of Multiple-Duty Caregivers
November is National Caregiving Month. We respectfully take time to honor our professional caregivers. We also recognize our equally important unpaid caregivers. Especially during the ongoing COVID-19 pandemic, we pay tribute to these frontline workers. But what about those people who are double—or even triple—duty caregivers?
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Tips for Communicating with Health Care Professionals as a Caregiver
Caregivers for older adults often find themselves needing to play a key role as a communicator and decision-maker during their loved one’s health appointments. However, this role can often be challenging, especially when we are unfamiliar with medical terms, or feel like we shouldn’t burden health care professionals with questions they’ve probably answered a hundred times before.
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Sundowning and Dementia: What to do About Late-Day Behaviors
For those with dementia and their caregivers, the late day hours can often be a disorienting, stressful time. When the sun goes down, individuals with dementia may become agitated, restless, confused, irritable and at times even delirious—seeing and hearing things that are not there—to a greater extent than they do early in the day. This symptom of dementia is known as “sundowning” or “Sundowners Syndrome.” For individuals with dementia and their caregivers, it can be a scary, upsetting nightly occurrence.
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